National Support
Patient/caregiver support and information for FCS patients and caregivers
FCS Foundation is a US-basesd patient community
- Website: www.livingwithfcs.org
- Facebook: www.facebook.com/fightFCS
Canadian Organization for Rare Disorders (CORD) is interested in hearing from FCS patients living in Canada that may be interested in getting involved.
- Website: www.raredisorders.ca
LPLD community on RareConnect is sponsored by the EURORDIS and is an on-line based community where FCS patients can connect with others from all over the world.
Association de l`hyperchylomicronémie is a Canadian-based patient community (French):
l’hyperchylomicronémie familiale is a French-Canadian patient community: