Helpful Links

National Support

Patient/caregiver support 
and information for FCS patients and caregivers

FCS Foundation is a US-basesd patient community

Canadian Organization for Rare Disorders (CORD) is interested in hearing from FCS patients living in Canada that may be interested in getting involved.

LPLD community on RareConnect is sponsored by the EURORDIS and is an on-line based community where FCS patients can connect with others from all over the world.

Association de l`hyperchylomicronémie is a Canadian-based patient community (French):

l’hyperchylomicronémie familiale is a French-Canadian patient community: